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Patient Story – Fatima

Patient Story – Fatima Fatima is in her late 70s and lives in Streatham, South London. Her two daughters, Saida and Zahda live nearby, with Zahda being her Mum’s main carer. In March 2020, Fatima was admitted to hospital and initially, it was thought that she...

Patient Story – Michael

Patient Story – Michael My name is Michael, I am 63 years old and live in Malton in North Yorkshire with my partner who has more recently also become my carer. In the earlier part of my working life I had a variety of jobs but in my mid-thirties began a career...

Patient Story – Aziza

Patient Story – Aziza Aziza lives in Scunthorpe was diagnosed with Muscular Dystrophy Type 2 in 1996 when she was seven. It is a condition which affects the muscles and the respiratory system, and Aziza has used home mechanical ventilation since her diagnosis....

Patient Story – Cath

Patient Story – Cath Cath is in her late forties and lives in Middlesborough with her partner, Carolyn and one of their two grown up children, as well as their three cats. She was diagnosed with spinal muscular atrophy, type two when she was four. Her condition...