Meet the Team – Sarah Rose

Meet Sarah Rose from HMViP and Pathfinders

I am trustee co-chair of a user led charity called Pathfinders Neuromuscular Alliance. We provide support, services, information guides and run events and campaigns on issues affecting adults living with muscle weakening conditions. Many of our members are HMV users, including myself. I have been using non-invasive ventilation for 30 years. 

What is your interest in HMV?
I’m interested in HMV for Neuromuscular conditions in particular but in general raising awareness.  

When did you join the HMViP?
2022

What do you personally hope to see the group achieve?
I would like to see the group continue to grow, reach more people to show how life with HMV can be a game changer in terms of health, independence and quality of life. In addition, for the HMVIP group to be the place to go for useful and accurate information, going forward.




What is Home Mechanical Ventilation?
We have developed a patient leaflet which can be accessed here and printed off by clinicians, patients, family members or carers. It provides information about HMV, what it is and who might benefit from it, and details resources to provide additional support.

Click here to download your copy.

About Us

HMViP (Home Mechanical Ventilation in Partnership) is a holistic collaboration of health care professionals working within the field of home mechanical ventilation (HMV). It benefits from representation from service users including patients and carers.

This website is dedicated to the memory of Ronnie Ward whose HMV treatment allowed him to spend the final four years of his life at home with his family.

This website has been developed using the expertise and experience of the healthcare professionals, patients and carers who make up the HMViP Group and was funded from a grant provided by ResMed UK Limited.

Contact Us:

Gillian Gibbons
Secretariat
07795 342804

 

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All rights reserved. HMViP 2023.